Mesothelioma Between Disease and Law

Many people are available to help you and your family.

There are specialist lung and mesothelioma cancer nurses in most large cancer treatment hospitals. Mesothelioma UK can give you details of local specialist nurses and support groups for people affected by mesothelioma (phone 0800 169 2409).

Specialist mesothelioma nurses answer questions on treatments, cancer and support services from people in their areas. They can also organise equipment that may be needed by people with mesothelioma, such as special beds or walking aids. Asbestos Support Groups offer help and support.

Various people can offer support in the community. District nurses work closely with GPs and make regular visits to some patients and their families at home. In many areas of the country there are also Macmillan and Marie Curie nurses, who are specially trained to look after people with cancer in their own homes. Let your GP know if you are having any problems so that help can be arranged.

The hospital social worker is also often able to help in many ways, such as giving information about social services and other benefits you may be able to claim while you are ill. For example, you may be entitled to meals-on-wheels, a home help or hospital fares. The social worker may also be able to help arrange childcare during and after treatment and, if necessary, help with the cost of childminders.

Some people need more than advice and support. You may find that the impact of cancer leads to depresion, feelings of helplessness and anxiety. Specialist help in coping with these emotions is available. Often it is easier to talk to someone who is not directly involved with your illness. You can ask your hospital consultant or GP to refer you to a doctor or counsellor who is an expert in the emotional problems of people with cancer and their relatives.

Our Cancer Support Service can tell you more about counselling and can let you know about services in your area. You can also contact the Cancer Counselling Trust.

Some hospitals have their own emotional support services with specially trained staff. Nurses on the ward may have training in counselling and will also be able to give advice about practical problems. Some people find great comfort in religion at this time and it may help them to talk to a local minister, hospital chaplain or other spiritual or religious advisor.